March 31, 2012
Arion started PT, OT and Speech therapy 3 days ago and they are whipping his butt into shape!!!! He is
spending about three hours a day in his wheelchair and has mobility in all his parts except the right side of his
face but they are hopeful that will return with time. His balance is still pretty off but welcome to Arions world I
don't think he's ever been able to walk a straight line. The staff at rusk are amazing it has been a joy to work
with them. I still have no doubt in my mind that everything will b ok and I don't worry about the future because
with a mom and sis he couldnt have been placed with 2 stronger women like he has as well as family and
friends. IT'S ALL GOOD!!!! Thanks for continued prayers and support
And God rested on the 7th day and so is Arion
March 31, 2012
Today was a great day. Arion worked out with all his therapists today and dominated in OT's game of yahtzee.
We had several visitors and that was really nice a excellent change of pace!! After everyone went home A and I
went to the day room and he got a coke and pop tart for a job well done for healthy eating and drinking plus all
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Bringing family, friends and loved ones together when it matters
his hard work in therapy. We also watched toy story while we snacked he sat eating drinking watching movies
and playing on his iPad we are gonna blow the speech therapists mind with all that still working with sounds
and facial movements and he is getting better with sitting in his wheelchair. I talked to his neurosurgeon and she
asked if Arion would like to be the image for the fundraising campaign they are set to kick off April 13th my
boy is a rock star funny thing bout that Charlie is this years campaign is shaving your head to support those with
cancer. He's also been asked to be the face for Mexico Walmart childrens miracle network campaign. I have to
tell you about the prayer blanket the women from middletown made which isn't just beautiful it also has a story
that is beautiful and places all over for everyone who comes up can read the story and add their knot thank you
so much for all the love prayers and support. The letter below is from his neurosurgeon please if you have
anything extra to give donate to this event or come out and support it!! with the funds they raise from this
maybe we can find a way to cure our kids!!
Thank you for your help!
Go bald in April at St. Baldrick’s fundraiser
Join Thomas Loew, MD, director of the Division of Hematology and Oncology at MU’s Department of Child
Health and Children’s Hospital, to raise money for pediatric cancer research. The Conquer Kids’ Cancer
fundraising event will begin at 5 p.m. Saturday, April 14, at Boone Tavern in Columbia.
Along with Loew at this student-organized event, faculty members, staff members and medical students will
shave their heads to support pediatric cancer patients.
To learn more and donate, please visit MU’s St. Baldrick’s page
To see a video recap of MU’s first St. Baldrick’s event, please visithttp://www.youtube.com/watch?v=bQfRKg